It is said to affect 1 in 2 million individuals worldwide. Jasmin is one of less than 300 people in the United States with FOP, and one of about 800 in the world. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone.” It causes bone to form in muscles, tendons, ligaments and other connective tissues. Jasmin’s parents were left asking questions like “What’s wrong with our daughter?”, “Why is she having a stiff neck?” and “Why does she have these bumps on her back?”Ī rheumatologist in Hartford, Connecticut finally diagnosed her with FOP, or “stone man syndrome.”Īccording to the International FOP Association, or IFOPA, FOP is “one of the rarest, most disabling genetic conditions known to medicine. “I just know that it was very unsettling that we went to the doctors and they just didn’t know. “One thought it was torticollis, they thought it was Lyme disease, they thought it was ankylosing spondylitis,” Jasmin’s mother, RoJeanne Doege, said. So her parents started looking for the reason why, which led to consultations with four different doctors before a final diagnosis. However, Jasmin’s neck was abnormally tilted when she left school the same day. But she and her parents shrugged it off, thinking it was just stiff from having slept wrong the night before. One fall morning, she complained of a stiff neck on the way to school. Jasmin, now 27, was beginning kindergarten that same year. Jasmin Floyd was diagnosed with Fibrodysplasia Ossificans Progressiva when she was 5 years old in January 1999. They didn’t know anybody in Connecticut or even the rest of New England.
She and her family moved from Oshkosh to Connecticut in July 1998 due to her father accepting a new job.
She was diagnosed with Fibrodysplasia Ossificans Progressiva, or FOP, over 20 years ago, in January 1999. That’s exactly what Oshkosh native Jasmin Floyd has been going through. Imagine having this happen since you were 5 years old. Imagine painful flare-ups when new bone is forming within you. Imagine growing a second skeleton inside your own body.
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